September is one of my favorite months. Here we are, three fourths of the way into the year, and we get to start over again! Fresh. There are crisp white lined notebook pages read to be filled, perhaps the chance to get a few new outfits that make you feel a little extra shiny. As Joe Fox says in You’ve Got Mail, “It makes me wanna buy school supplies. I would send you a bouquet of newly sharpened pencils if I knew your name and address.”
This month is also an important month for me because it is Desmoid Tumor Awareness Month. Since 2018, I’ve done my hardest to use this year to educate folks about the reality of this disease while also trying to preach hope. I’m drawing from two different and real feelings.
This year, that’s the place I’m coming from. Reality and hope. I have one foot firmly planted in the pain, exhaustion, and fear of the last year, and the other planted in the hope this new trail drug offers me. It’s pain and progress in equal measure.
I humbly ask that if you are so able, you would consider a donation to the Desmoid Tumor Research Foundation. There are so many places you could generously offer your money, especially in a time when so many have lost so much. What I can promise you is that every penny of that donation goes to fund research for patients like me – because they already have!
YOUR DONATIONS have brought education to pathologists who now know how to more carefully observe confusing biopsy tissue under a microscope.
YOUR DONATIONS have resulted in a consensus paper, the first of its kind, to guide unfamiliar doctors worldwide in the treatment of this rare disease.
YOUR DONATIONS are funding research grants for motivated medical professionals to unlock the secrets of this disease.
Let me tell you more about why this cause means so much to me in this video.
This year, the DTRF chose not to hold its largest fundraising event of the year in person in order to protect the most vulnerable among us. I respect and stand by this decision 100%! What it does mean, however, is that we are drastically behind on fundraising. We usually count on your registrations to fund projects and that’s simply not possible this year.
So please join me in donating to this incredibly important cause! It’s needed now more than ever.
Donate here – and feel free to share!
Thank you, as always for your support. Without it, I would be completely lost.